资讯
Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...
Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...
A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...
Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...
Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.
Type 0 The rarest and most severe form of the disease, SMA type 0 is defined by symptoms that are apparent before birth, while the fetus is still in the womb. Babies with this type of SMA usually need ...
Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...
Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.
Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...
No description.Kevin graduated from North Carolina State University with a bachelor’s in English in 2016, and he is passionate about different forms of storytelling. He started at Bionews in 2017 as a ...
There are several treatment options available for spinal muscular atrophy (SMA), a rare genetic condition characterized by progressive muscle weakness and wasting. The disease mainly affects motor ...
How is Evrysdi administered in SMA? Evrysdi can be given as a flavored liquid in a solution taken orally or via a feeding tube. It recently became available as oral tablets for patients 2 and older ...
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