资讯

Sickle Cell Disease News1 天
World Sickle Cell Day events include walks, vigils, building lights
Illuminating public buildings in red, candlelight vigils, and walks are among events planned for World Sickle Cell Day, June ...
Sickle Cell Disease News2 天
This World Sickle Cell Day, I’m grateful for UK advocacy groups
In honor of this year's World Sickle Cell Day, columnist Dunstan Nicol-Wilson recognizes several organizations that are making a difference.
Sickle Cell Disease News6 天
Sickle cell disease cell therapy named FDA orphan drug
BEAM-101, a genetically modified cell therapy for sickle cell, is designed to turn on HbF to counteract mutated adult ...
Sickle Cell Disease News7 天
Silence of sickle cell in children doesn’t always indicate mild disease
Even if children with sickle cell disease appear asymptomatic, it's still crucial to provide proper care, says columnist.
Sickle Cell Disease News8 天
I can’t always identify the causes of a sickle cell crisis, despite my efforts
For columnist Mary Shaniqua, who tracks her health closely, not being able to discern the causes of a sickle cell crisis is ...
Sickle Cell Disease News12 天
Oral inhibitor rilzabrutinib granted FDA orphan drug status for SCD
The FDA has granted orphan drug status to rilzabrutinib, an investigational therapy to prevent pain crises in sickle cell ...
Sickle Cell Disease News15 天
Algorithm helps reduce unneeded hospital stays for sickle cell children
An algorithm is helping to reduce the number of unnecessary hospital admissions for children with sickle cell.
sicklecellanemianews7 个月
Living with a disability doesn’t mean we are worth less
Although approximately 1 in 6 people worldwide are living with a significant disability, the narrative that those of us with disabilities deserve less continues to be perpetuated. Though frustrating, ...
sicklecellanemianews10 个月
Stem cell transplant for sickle cell disease
What is a stem cell transplant for SCD? A stem cell transplant — also known as a bone marrow transplant, and more formally referred to as hematopoietic stem cell transplantation (HSCT) — is an ...